Updated 09:38 pm.EST, Fri November 20, 2009

Opinion|Sat, Sep. 19 2009 02:07 PM EDT

Will Babies with Down Syndrome Just Disappear?

By R. Albert Mohler, Jr.|Christian Post Guest Columnist

The development of prenatal diagnostic technologies presents a constellation of moral issues -- with the diagnosis of Down syndrome front and center. Over the past several years, a marked decrease in the number of babies born with Down syndrome has been both observed and widely reported. This decrease can be traced directly to the decision to abort after prenatal diagnosis.

As Science Daily reports, a new leading article to be published in Archives of Disease in Childhood points to developments in the near future that will likely increase the diagnosis of Down syndrome [DS] during pregnancy. "New tests expected to be introduced next year will offer a simple blood test that poses no risk to the fetus and delivers a definitive diagnosis of one of more of the genetic variants of Down syndrome -- trisomy 21, translocation, or mosaicism," the journal reported.

The development of these new tests will almost surely make the practice of prenatal screening for Down syndrome more widespread. At present, the available tests pose some risk to the fetus and are invasive. The new tests expected next year are based on simple blood tests.

The new research is based on work by Dr. Brian Skotko, a clinical genetics fellow at Children's Hospital Boston. Skotko, who has a sister with Down syndrome, asks this haunting question: "As new tests become available, will babies with Down syndrome slowly disappear?"

His research reveals deeply troubling trends. Between 1989 and 2005, births of babies with Down syndrome decreased by 15 percent. As Science Daily explains, "In the absence of prenatal testing, researchers would have expected the opposite -- a 34 percent increase in births -- due to the trend of women waiting longer to have children; known to increase the chances of having a baby with Down syndrome."

In an article published in 2005, Skotko argued that doctors are often ill-prepared to discuss the diagnosis of Down syndrome with their pregnant patients. Chillingly, he also revealed that a significant percentage of the doctors "reported that they 'emphasize' the negative aspects of DS so that patients would favor a termination."

With the new technologies of prenatal diagnosis so close on the horizon, Skotko now sees a "true collision" on its way. "More women will be going through the testing process, which could lead to a lot of difficult, uncomfortable conversations between physicians and expectant patients."

The reason for the decrease in the number of babies born with Down syndrome comes into clearer focus when The Washington Post cites Skotko's research indicating that 92 percent of women who learn they are carrying a baby with Down syndrome choose to abort the pregnancy. That is more than nine out of ten.

The dimensions of the "collision" Dr. Skotko sees coming now come into view. If these percentages hold, the development of these new tests will almost certainly lead to a vast increase in the number of babies aborted after the diagnosis of Down syndrome.

This presents a grave moral challenge to the medical community -- and to the society at large. Medical care is a social good for which the entire society is responsible. The development of prenatal diagnostic technologies and procedures brings a moral crisis right to our doorsteps -- and our hearts. Will we see people with Down syndrome simply disappear?

In his 2005 article, published in the American Journal of Obstetrics and Gynecology, Dr. Skotko explained that prenatal testing for Down syndrome presents expectant parents with a simple choice -- continue the pregnancy or abort. He continued:

Knowing this, health care providers have historically operated under the assumption that if a woman consents to prenatal screening or diagnosing, she must believe that having a child with DS would be an undesired outcome and wish to terminate her pregnancy if such a diagnosis were made prenatally."

Expectant parents should read that sentence over and over again, and so should those who counsel them.

As Dr. Skotko understands all too well, this moral crisis is not limited to babies with Down syndrome. He asks: "Should expectant parents be able to select out fetuses with an undesired sex? Should fetuses with genes that predispose them to adult breast cancer be prenatally identified? Should couples in the future be supported if they wish to terminate fetuses with genes correlated with sexual preferences?"

The fact that 92 percent of women who are told that their unborn child carries the high risk of Down syndrome choose to abort the baby should shock us all. What does that say about our devaluation of human life and human dignity? This can only mean that these women see a child with Down syndrome as not worth having -- and the baby as a life not worth living.

Dr. Skotko points to the new tests just around the corner and sees a collision coming. Given his important research, we had better see a moral crisis looming. The Culture of Death is gaining momentum before our eyes. Who will be next in line to be considered unworthy of life?

Adapted from R. Albert Mohler Jr.'s weblog at www.albertmohler.com.
___________________________________________________

R. Albert Mohler, Jr. is president of The Southern Baptist Theological Seminary in Louisville, Kentucky. For more articles and resources by Dr. Mohler, and for information on The Albert Mohler Program, a daily national radio program broadcast on the Salem Radio Network, go to www.albertmohler.com. For information on The Southern Baptist Theological Seminary, go to www.sbts.edu. Send feedback to mail@albertmohler.com. Original Source: www.albertmohler.com.
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  • Tue Sep 29, 2009 3:15 pm Agree: 1   Disagree: 2

    “Where there is charity and wisdom, there is neither fear nor ignorance.”
    FRANCIS OF ASSISI

    http://www.easterseals.com/site/PageServer?pagename=ntlc8_autism_after_21&printer_friendly=1
    http://www.easterseals.com/site/PageServer?pagename=ntlc8_autism_service_adult
    http://www.nads.org/pages_new/facts.html

  • Tue Sep 29, 2009 3:05 pm Agree: 1   Disagree: 2

    http://www.theautismnews.com/2009/09/14/surfers-autistic-children-paddle-out-together-at-beach-bash-in-belmar/
    http://www.specialolympics.org/
    http://www.cbm.org/

  • Tue Sep 29, 2009 3:00 pm Agree: 1   Disagree: 2

    rhi,
    those links are just a few I have
    dealt with personally.

  • Tue Sep 29, 2009 2:59 pm Agree: 1   Disagree: 2

    rhibran,
    http://www.amazon.com/Acres-Hope-Miraculous-Familys-Children/dp/1577486250/ref=sr_1_1?ie=UTF8&s=books&qid=1254249773&sr=1-1
    http://ndss.org/stories
    autismspeaks.org
    autism-society.org
    http://www.amazon.com/Strength-Mercy-Making-Difference-World/dp/1578561949/ref=pd_sim_b_1
    http://www.allgodschildren.org/
    many many families, many adoptive familes and foster home.
    http://www.4pawsforability.org/autismdogs.html

  • Sun Sep 27, 2009 7:28 pm Agree: 4   Disagree: 1

    I am waiting for the "normal" people to do something positive to provide for the long term care of people with mental handcaps rather than use them as another pro-life propaganda moment. I have yet to see a pro-life demonstration in Washington to demand care for those already born. Some people seem to lose interest once the child is no longer in the womb.

  • Sat Sep 26, 2009 1:14 am Agree: 3   Disagree: 5

    "AFFLICTED means of a problem or illness, to cause pain or suffering to and YOU think that's normal?"

    We can learn quite a bit from people with down syndrome. I think it is "normal" people that have the real problems....

  • Fri Sep 25, 2009 4:37 am Agree: 6   Disagree: 1

    I am sure that the most pro-life states like Alabama and Mississippi have splendid programs to take care of downs syndrome and other retarded children when their parents are deceased or unable to care for them. Children grow up even when they remain childlike intellectually. I am sure they are not warehoused or abused in anyway because the state pays top salaries to ensure these citizens are cared for by highly qualified care givers. And I am equally sure that the all pro-life people have visited the institutions in their states that care for these individuals to insure their well being. I am positive that those who oppose "socialism" have donated serious money to insure the care of these people in the community rather than locked away in institutions whenever possible. Unfortunately, when I worked for the state of Texas, we were not doing all that well but I am sure that now that we have a pro-life governor and legislature and senators, the adult mentally challenged are receiving exemplary care and that all school districts are uniformly providing for their special needs. How could it be any other way when God fearing people control the government. Of course they will have to reject any tainted federal assistance and rely upon the generosity of pro-life citizens.

  • Fri Sep 25, 2009 4:06 am Agree: 3   Disagree: 1

    If you remember the reports on this site that regularly state most Americans do not support abortion, this is telling. If nine out of ten mothers choose abortion in this situation, it indicates that a lot of women (and fathers) have a different view of abortion when it comes to their family.
    For those who are troubled by this private decision, they might get their church to provide for adoption and/or a life time of care for downs syndrome children. Do you think lack of universal health care might also be a factor? I don't think the insurance companies and pharmaceutical companies are going to give special help to the families of downs syndrome kids. Of course the government can't help because that would be socialism.

  • Wed Sep 23, 2009 12:52 pm Agree: 4   Disagree: 4

    "The Nazis decided that it was a waste of time and money to support the handicapped. During Hitler's "cleansing program", thousands of people with various disabilities were deemed useless and simply put to death like dogs and cats.

    "In the postwar world, Auschwitz has come to symbolize genocide in the twentieth century. But Auschwitz was only the last, most perfect Nazi killing center. The entire killing enterprise had started in January 1940 with the murder of the most helpless human beings, institutionalized handicapped patients..."
    Henry Friedlander, The Origins of Nazi Genocide: From Euthanasia to the Final Solution"

  • Wed Sep 23, 2009 9:12 am Agree: 0   Disagree: 3

    Flagged as inappropriate. show RJ78, apparently you know me. I helped organize the protest that shut down UVa in May '70 and was involved in several anti-war protests in DC. I then went on to work for the ACLU in grad school on jury desegregation and womens' college admissions to formerly all-male schools. A quote from your post "afflicted with Down's Syndrome should bring their baby to full term and care for it as they would a normal child." AFFLICTED means of a problem or illness, to cause pain or suffering to and YOU think that's normal? It's a burden, a life sentence to suffering for both parent and child. You're the sick one. hide

  • Tue Sep 22, 2009 12:45 am Agree: 4   Disagree: 5

    Amen rj78, amen.
    we have special needs children in our family.

  • rj78 »
    Mon Sep 21, 2009 10:37 pm Agree: 5   Disagree: 0

    Women pregnant with a baby afflicted with Down's Syndrome should bring their baby to full term and care for it as they woud a normal child.

    That baby is God's gift to them. It is unique. There will never be another child like it.

    Abortion causes a mother to experience tremendous physical and emotional pain afterward. Ask Sinead O'Connor. God's forgiveness remains available, but they must live with their decision.

  • rj78 »
    Mon Sep 21, 2009 4:37 pm Agree: 3   Disagree: 0

    U4-

    Apparently all those beatings the National Guard gave you during your protests in the '60s are bothering you again.

  • Mon Sep 21, 2009 4:05 pm Agree: 5   Disagree: 0

    u4 I didn't know that perfection was part of the definition of human being. If it is then none of us would be here. Having an 'imperfect' child, raising him or her and loving them is the difference between TB race horses and human beings.

  • Mon Sep 21, 2009 12:19 pm Agree: 11   Disagree: 8

    Flagged as inappropriate. show Actually I wonder if there isn't a higher incidence of Down's and autistic off-spring among Fundamental Xians. Certainly they are all suffering from the mental disorders of sever delusions and disconnections from reality. Maybe that's an indicator of weak genetic material over that segment of population. We know attainment of higher education decreased the chance of fundamental Xian beliefs. Perhaps it's a genetic flaw they we could breed out of the population. What do you think? hide

  • Mon Sep 21, 2009 12:06 pm Agree: 8   Disagree: 8

    Flagged as inappropriate. show My flagged comment for those too lazy to unhide: This is a good thing, prenatal testing is effective in reducing defective fetuses. What's shocking is that only 92% choose to terminate. I am really amazed that everyone isn't applauding the decrease in births of Down's Syndrome kids. I know from another study the the birth rate for physically deformed children has fallen by over 80%. A near 100% termination rate exists when defects are discovered in prenatal testing. That means lots of Xians are aborting and keeping a secret. RJ78, I hope they're aren't happily breeding. We don't need to promulgate their defective genes. God didn't make them but the DNA of their parent's defective genetic material sure did. As an atheist, who holds the Man is the Supreme Being I see nothing wrong at all with wanting to make the species better though the science of genetics. I have been around thoroughbred horses and purebred dogs all my life and you breed for the best and neuter the rest. I am a supporter of placing controls on who can breed and testing all breeder couples for the quality of their genetic material. It is a shame that Hitler gave Eugenics a bad name. There is plenty of scientific knowledge today to make the concept of breeding a better species a reality. I just love the the comments that they are so sweet and lovable. Nothing like a cuddly IQ of 80. It's like they are a farking pet. Awwwww, it's so cute. non-judgmental, give me break, my dog is non-judgmental too. hide

  • Sun Sep 20, 2009 11:38 pm Agree: 10   Disagree: 1

    "love the unlovable."

    The ironic thing here is that these are some of the most loving, accepting, non-judgmental,and happiest people I've ever met. They are amazing. I've been blessed to work with them for 14 years, I wouldn't trade it for anything. U4, I pity you.

  • Sun Sep 20, 2009 6:02 pm Agree: 7   Disagree: 3

    u4 should not only be flagged , should be banned from CP .

    "“Woe to you, scribes and Pharisees, hypocrites! For you are like whitewashed tombs which indeed appear beautiful outwardly, but inside are full of dead men’s bones and all uncleanness. 28 Even so you also outwardly appear righteous to men, but inside you are full of hypocrisy and lawlessness. "

  • rj78 »
    Sun Sep 20, 2009 3:03 pm Agree: 8   Disagree: 1

    U4

    My son is mildly autistic, and his best friend is a girl with Downs Syndrome.

    They are happier in life, apparently, than you are.

    To judge someone with a disability is to judge the God Who made them. God is, even now, storing up your words for which you will give an account on judgment day.

  • Sat Sep 19, 2009 11:36 pm Agree: 1   Disagree: 0

    Oops, check the math. Make that 8%.

  • Sat Sep 19, 2009 11:35 pm Agree: 0   Disagree: 0

    U4,
    I'm not the fellow who flag your post which wasn't worth flagging. It made an honest point.
    But to reply to same. I guess that means that 92% of people have an inate ability to "love the unlovable." It speaks volumes that many would not desire a 100% genetically perfect child as a criterion for viability decisions. This would be nonsense to a eugenisist, but not on the radar for the rest of us.

  • Sat Sep 19, 2009 8:52 pm Agree: 0   Disagree: 8

    Flagged as inappropriate. show This is a good thing, prenatal testing is effective in reducing defective fetuses. What's shocking is that only 92% choose to terminate. hide

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